RMAN4443 wrote:Chris, sorry to hear about the news.......
but remember how lucky you are to still be kicking and able to enjoy life ......you asked.........but seriously I wish the news had been better for you.....I really am at a loss for words, so just hang in there brother and try to make the best of what you've got
No need to be sorry brother it is life. On the serious side I do need to hear it, see it, read it however you want to put it. Due to I do get fed up with it all from time to time. Especially when what little hope I had gets yanked.
I thought that with the current diagnosis I had, over a long period of time, I might be able to rebuild those neuro pathways. The Dr was hopeful of this as well. Now we know that this will not happen well, unless aliens come pick me up and rebuild my gord using some out of this world tech. We can still hope right?
When we got news of this I had noticed my wife just sunk. I could feel her hope just suddenly gone. It was like someone took all the wind from her and stuck it in a paper sack and sold it on ebay. The whole dang room changed. That broke my heart because I know what kind of burden it can be having to deal with a family member that is screwed in such a way.
I know I still gotta keep going and every day trying to work out my gray matter. Dr's are not always right but trying to hang on to that at times it gets very old very fast.
The thing is this hopeless feeling is not for myself. Granted it sux major balls on my behalf. Losing my capability of mental capacity and function has and still is a big fear of mine, but in seeing what it does to my wife that is the serious kick in the balls. Even though my wife didn't say nothing bad, I can tell what it did to her when that info was laid on the table. She keeps telling me that no matter what and all that good Jazz but I still know what it's doing to her physically and mentally. To see that hope in her vanish in an instant well that's what kills me more than anything else and to know that I am the cause. If any of that makes sense.