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Last post 9 years ago by jeferris. 65 replies replies.
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Edit: Not Vertigo Called Vestibular Maigraines
JKilburn Offline
#1 Posted:
Joined: 10-19-2011
Posts: 1,461
Anyone ever experience this? Holy crap it is horrible. About 10 days ago I was on the couch sitting up and the next thing my wife finds me laying on the floor. Tried to make it to the bedroom but was so jelly legged that she had to call 911. Everything came back clear (CT scan, blood, urine tests) so I saw an ENT doctor today and have to go through some more testing. Obviously thinking inner ear. Tried meds and the Epley maneuver with no success. It just makes me feel weird trying to "stabilize" my surroundings. I can get around but can not drive or work for the moment and will not carry around the 7 week old out of fear of losing balance.

Thoughts, magical cures?

Thanks,

Josh
dstieger Offline
#2 Posted:
Joined: 06-22-2007
Posts: 10,889
Almost 20 years ago, I was doing inclined sit-ups on a ship at sea when we took a roll as I was sitting up. I was totally f'd for almost three weeks. Imagine your condition, but on a ship rocking at sea. Diagnosis was benign positional vertigo (BPV). Back then, they had the diagnosis down, but not the corrective technique. Recent research for a friend led me to believe that the corrective measures are relatively safe and easy and much improved from when I was told to 'suck it up'.

After it died down suddenly some 3 weeks later, it still came back intermittently for a few years -- maybe once a month, but generally only lasted for about 30 seconds per 'episode'.

Good luck!.......and suck it up :)
DrafterX Offline
#3 Posted:
Joined: 10-18-2005
Posts: 98,555
I've always had a pretty good reason for falling down... I dunno... Think
bloody spaniard Offline
#4 Posted:
Joined: 03-14-2003
Posts: 43,802
Don't know of any "cures" at the moment but I know that sort of "fear" or problem with heights is part of the aging process. As I've gotten older, even standing out on my open deck under the stars at night sometimes makes me a little dizzy especially when I look up. Also have issues with movies where heights are involved- get sweaty palms when a guy stands on a ledge and looks down, etc. LOL.
fog
snowwolf777 Offline
#5 Posted:
Joined: 06-03-2000
Posts: 4,082
Hey Josh. About 4 weeks ago, exact same thing happened to me. Might have expected such back in my drinking days, but not from coffee. Two quick bouts with it where I went from my feet to the floor with no warning. Since then, a few bouts where I get dizzy - usually when I turn my head quickly to the left. Doc gave me meclizine, but the that was worse than the vertigo. It has slowly gotten better. Someone at work said there was some virus going around that causes this with the inner ear and there's no cure. Body has to fight it off on its own. Had another scare last week out of the blue after being (mostly) OK for a week.

All that being said, I wouldn't assume anything and definitely see an ENT. I'm headed there if I can't get it cleared up.

Let me know how you come out.



teedubbya Offline
#6 Posted:
Joined: 08-14-2003
Posts: 95,637
bloody spaniard wrote:
Don't know of any "cures" at the moment but I know that sort of "fear" or problem with heights is part of the aging process. As I've gotten older, even standing out on my open deck under the stars at night sometimes makes me a little dizzy especially when I look up. Also have issues with movies where heights are involved- get sweaty palms when a guy stands on a ledge and looks down, etc. LOL.
fog


Exactly what genre of porn do you watch where that is an issue?
bloody spaniard Offline
#7 Posted:
Joined: 03-14-2003
Posts: 43,802
Go ahead, laugh at my pain.Crying
Some day you'll be wearing Depends or making a little extra change by filing accident lawsuits ike Snowwolf too.
teedubbya Offline
#8 Posted:
Joined: 08-14-2003
Posts: 95,637
I aint laughing at you, I'm just bored with my porn collection and trying to amp things up a bit.
JKilburn Offline
#9 Posted:
Joined: 10-19-2011
Posts: 1,461
snowwolf777 wrote:
Hey Josh. About 4 weeks ago, exact same thing happened to me. Might have expected such back in my drinking days, but not from coffee. Two quick bouts with it where I went from my feet to the floor with no warning. Since then, a few bouts where I get dizzy - usually when I turn my head quickly to the left. Doc gave me meclizine, but the that was worse than the vertigo. It has slowly gotten better. Someone at work said there was some virus going around that causes this with the inner ear and there's no cure. Body has to fight it off on its own. Had another scare last week out of the blue after being (mostly) OK for a week.

All that being said, I wouldn't assume anything and definitely see an ENT. I'm headed there if I can't get it cleared up.

Let me know how you come out.




I guess I have to wait for them to call me. Going to some place called the Balancing Center to run tests. The exercises they gave me are basically sit on a bed and fall to one side then the other. That wasn't bad. The other was to shake my head back and forth fast 5 times x 3. That sucked. Gave me a headache and was nauseous afterwards.

Thanks for the other input too. Suck it up is about the only thing to do at this point!
itsawaldo Offline
#10 Posted:
Joined: 09-10-2006
Posts: 4,221
Well I'd through a little Jack Daniels on it and that, for me works every time!

Seriously though, I had a bout with suspected TIA's (mini strokes) a few years back, before I had my heart fixed.

Started looking cross eyed, dizzy etc. never ended up on the floor though.

CT showed some spots in my brain that "could look like" TIA's but they decided not.

Had it happen in a store, while driving, scared the crap out of me, pulled over until it passed.

Good luck and make sure you hold the kid sitting down!
wheelrite Offline
#11 Posted:
Joined: 11-01-2006
Posts: 50,119
get well soon...

on a side note,,,

I get dizzy every evening,,,
Usually when navigating to bed....


wheel,
glongoria Offline
#12 Posted:
Joined: 01-29-2009
Posts: 483
I had that once...... Fell right off my bar stool.Beer
jackconrad Offline
#13 Posted:
Joined: 06-09-2003
Posts: 67,461
Hey i hope you get better soon bro..
dr.smac Offline
#14 Posted:
Joined: 10-19-2008
Posts: 2,071
Epley maneuver is what you want. Most chiropractors are trained in it.
rfenst Offline
#15 Posted:
Joined: 06-23-2007
Posts: 39,336
True vertigo? Actual room spinning? Inner ear isn't the only possible cause of vertigo. Of course get all the inner ear testing done, but also see a NEUROLOGIST ASAP.
Kidmd Offline
#16 Posted:
Joined: 07-12-2013
Posts: 314
Lots aof causes of vertigo.
Most common is the BPPV.....benign Paroxysimal positioning vertigo...as eluded to above..this is caused by build up of crystals in the inner ear..causing the nerves to inadvertently fire at inopertune times and excessively, leading to vertigo and usually hearing loss.
Optic ( ear) nerve poisoning is another...drugs and things...bring a list of all meds to the doc...
Acoustic neuroma...would have seen on CT or MRI
Optic nerve neuritis, labrynthitis...viral infection of middle ear.. Cured by compound tincture of time...
Dehydration can cause this as well
Postural hypotension...low blood pressure...sudden changes in position and the body not adjusting quick enough can cause this...this is commonly accompanied by the "black out" , this is what it sounds like may have happenned to you...drink lots of fluids, and get your pressures check by a GOOD internist (internal medicin doctor), not a family medicine guy...no offense to my colleagues in FM. Or a cardiologist. This is what occurs when you stand up to fast and get dizzy, as we get older we have more issues with this...blockage of the carotid arteries going from the heart to the brain can decrease blood flow to the brain, thus this benign phenomenon of postural hypo tension can be exacerbated, get a doppler ultrasound of these.. To check it out.

These are just a few problems...
I don't knowyour age but the last paragraph applies to a very common cause as we all get older

Disclaimer:
Not a dic doc... But I did stay at a holiday in last nite....Sarcasm
cacman Offline
#17 Posted:
Joined: 07-03-2010
Posts: 12,216
Several years ago I was involved in a head-on accident and suffered post-traumatic vertigo a couple days after the accident. I was horizontal for a month - couldn't work, walk, read, watch TV, etc. I was prescribed Valium. I love Valium and my meds where strictly monitored. Apparently taking 1 or 2 valiums every other hour is not good for you. To this day I still suffered bouts of severe Vertigo. I always drink a ton of water, and maintain a high-protein diet void of processed sugars. Dramamine can help with the nausea and some dizziness, but can also make you drowsy and suppress your hunger. Zofran works great for my chronic nausea without the drowsiness or hunger suppression. MMJ also works well for nausea and maintaining your appetite, but will it make you drowsy and does not immediately help with inner ear issues.

See your doctor. Good luck.
JKilburn Offline
#18 Posted:
Joined: 10-19-2011
Posts: 1,461
I go on the 18th to a Balance Center. They said the testing can take anywhere from 3-4 hours. They'll put a bunch of things all over me and put me in situations from the floor or walls moving to light sensitivity. Said something about putting water in my ears too. Sounds like fun.....not really but hey if it helps find a solution I'm game.
Palama Offline
#19 Posted:
Joined: 02-05-2013
Posts: 23,705
Praying that all goes well.
JKilburn Offline
#20 Posted:
Joined: 10-19-2011
Posts: 1,461
For those that were interested (snowwolf), I had the testing done on Friday and find out the results tomorrow. The testing took about 3 hours and most of it I had some sort of helmet on and lenses hovering my eyes. Believe eye movement helps them in the testing... Anyhoo it really sucked due to already being dizzy and they basically make you dizzier. Test one they spin you in a chair in total darkness and have you follow stuff. After a bit you have no clue which way your spinning. Then on to different balance tests which aren't bad but aren't fun. Lastly they put warm water in your ear while on a 45 degree angle, then you just face normal and that's when the magic happens. I've never been so dizzy in my life the lady watching the monitor said my eyes were twitching so bad it made her chuckle. They do the other ear and then they repeat the process but with cold water. I was wrecked the entire day because of it. Fingers crossed for some sort of answer tomorrow.
wheelrite Offline
#21 Posted:
Joined: 11-01-2006
Posts: 50,119
Best wishes,,,

wheel,
dharbolt Offline
#22 Posted:
Joined: 08-03-2013
Posts: 6,931
Hope you get well soon man.
edin508 Offline
#23 Posted:
Joined: 06-19-2012
Posts: 4,647
Good luck!
snowwolf777 Offline
#24 Posted:
Joined: 06-03-2000
Posts: 4,082
JKilburn wrote:
For those that were interested (snowwolf), I had the testing done on Friday and find out the results tomorrow. The testing took about 3 hours and most of it I had some sort of helmet on and lenses hovering my eyes. Believe eye movement helps them in the testing... Anyhoo it really sucked due to already being dizzy and they basically make you dizzier. Test one they spin you in a chair in total darkness and have you follow stuff. After a bit you have no clue which way your spinning. Then on to different balance tests which aren't bad but aren't fun. Lastly they put warm water in your ear while on a 45 degree angle, then you just face normal and that's when the magic happens. I've never been so dizzy in my life the lady watching the monitor said my eyes were twitching so bad it made her chuckle. They do the other ear and then they repeat the process but with cold water. I was wrecked the entire day because of it. Fingers crossed for some sort of answer tomorrow.



Hope you get some resolution soon. I have follow-up with my Doc this Monday. I presume I'm headed for something similar as your experience. I guess we can think lesser of the evils. I'd rather be battling some inner ear thing vs some of the alternatives I've heard that can cause this, like problems with the ticker. Maybe we can get things all cleared up in time for the holidays.

On the upside, it doesn't get any worse when I smoke a cigar. So I got that going for me.

Keep me posted.
Ilovetosmoke68 Offline
#25 Posted:
Joined: 07-10-2012
Posts: 2,356
Hope they figure this shat out for for you, sounds like a nightmare. Wish you the best.
JKilburn Offline
#26 Posted:
Joined: 10-19-2011
Posts: 1,461
Thanks everyone. Test results were not good but not horrible either. I am going to have to start physical therapy and next Wednesday I'll have an MRI done on my brain. The doctor doesn't have an exact diagnosis thus the MRI to see if that will help aid in finding out what is wrong. Until then...
edin508 Offline
#27 Posted:
Joined: 06-19-2012
Posts: 4,647
Again, good luck with all of this going on. In my thoughts for some good news.
TIGERCDW Offline
#28 Posted:
Joined: 09-17-2009
Posts: 7,897
JKilburn wrote:
Thanks everyone. Test results were not good but not horrible either. I am going to have to start physical therapy and next Wednesday I'll have an MRI done on my brain. The doctor doesn't have an exact diagnosis thus the MRI to see if that will help aid in finding out what is wrong. Until then...



Did they rule out the possibilty that you are just a Nancy Boy?

TIGER
Abrignac Offline
#29 Posted:
Joined: 02-24-2012
Posts: 17,278
JKilburn wrote:
Thanks everyone. Test results were not good but not horrible either. I am going to have to start physical therapy and next Wednesday I'll have an MRI done on my brain. The doctor doesn't have an exact diagnosis thus the MRI to see if that will help aid in finding out what is wrong. Until then...



Good luck.

Pray
shaun341 Offline
#30 Posted:
Joined: 08-02-2012
Posts: 8,826
Good luck hope things start improving for you
rfenst Offline
#31 Posted:
Joined: 06-23-2007
Posts: 39,336
JKilburn wrote:
Thanks everyone. Test results were not good but not horrible either. I am going to have to start physical therapy and next Wednesday I'll have an MRI done on my brain. The doctor doesn't have an exact diagnosis thus the MRI to see if that will help aid in finding out what is wrong. Until then...


No diagnosis leads to the conclusion that you still MUST see a neurologist ASAP.

Also, Phenergan: anti nausea- has a positive effect on inner ear dysfunction. I have permanent disequilibrium and have text books on neurology; neuro-ophthalmology and neuro-otology. I'm not a doc, but do generaly know what I am writing about here. If this isn't from the inner ear, you are losing time by not having a neurological eval and TX.

Got my point yet? Get your but into a neurologist. Testing would involve MRI with and without contrast and circle of willis Imaging. Any competent neurologist will know, merely by examining you, in less than 5 minutes.

Don't let an ENT figure this out alone when it could be outside that field of expertise. Besides, neurologists are probably the most thorough examiners/diagnosticians. Spinal tap and thorough blood testing need to be done as well as this could be viral or bactarial; sytemic; auto-immune, stroke, MS or worse....
Palama Offline
#32 Posted:
Joined: 02-05-2013
Posts: 23,705
TIGERCDW wrote:
Did they rule out the possibilty that you are just a Nancy Boy?

TIGER


HEY, BACK TF OFF! ram27bat

You dissin' a nice guy!

I'm goin' step on your lawn pretty soon iffin' you don't watch out! Not talking

Send your addy while you're at it.














Hey JK - I got your back too!
JKilburn Offline
#33 Posted:
Joined: 10-19-2011
Posts: 1,461
rfenst wrote:
No diagnosis leads to the conclusion that you still MUST see a neurologist ASAP.

Also, Phenergan: anti nausea- has a positive effect on inner ear dysfunction. I have permanent disequilibrium and have text books on neurology; neuro-ophthalmology and neuro-otology. I'm not a doc, but do generaly know what I am writing about here. If this isn't from the inner ear, you are losing time by not having a neurological eval and TX.

Got my point yet? Get your but into a neurologist. Testing would involve MRI with and without contrast and circle of willis Imaging. Any competent neurologist will know, merely by examining you, in less than 5 minutes.

Don't let an ENT figure this out alone when it could be outside that field of expertise. Besides, neurologists are probably the most thorough examiners/diagnosticians. Spinal tap and thorough blood testing need to be done as well as this could be viral or bactarial; sytemic; auto-immune, stroke, MS or worse....


Thank you. It is on the list to do. Had planned on another opinion to be safe. With most things it gets overwhelming when you search the internet long enough and can find the answer ya want to hear/read. Had to search disequilibrium too and the symptoms with that are close to my issue as well.
JKilburn Offline
#34 Posted:
Joined: 10-19-2011
Posts: 1,461
Still having fun with the headaches and uneasiness of walking. Started taking a different medication last week to see if it helps any better. The first medication the neurologist gave me increased my symptoms. The side effects were exactly what my symptoms were! Basically it still sucks. The mri report came back clear but am going to ask if my doctor reviewed my mri or just went off the report. Reason I'll ask is when I had shoulder surgery the mri report came back clear but as soon as the specialist looked at it he saw bone spurs everywhere. If this medication doesn't work I'm possibly thinking of going to a different neurologist or seeing what else can be done since something has to be wrong. Still can't work or drive which is going on 4-5 months. Hope everyone had a Merry Christmas and has a fun NYE.
snowwolf777 Offline
#35 Posted:
Joined: 06-03-2000
Posts: 4,082
Still working on mine as well. Good news is no issues with MRI and EEG. No problems with my carotids. Holter showed some oddball heart stuff on a month-long trial that we have to discuss after the holidays. If that's not causing the dizzy spells, then it's off to an ENT, I presume.

Hope your holidays have been blessed in spite of the dizzy spells. Getting kinda tired of having the wife chauffeur me around everywhere, especially in the snow storms.Not talking



delta1 Offline
#36 Posted:
Joined: 11-23-2011
Posts: 28,797
Dang...thought no news was good news. Hope you can at least sit up and enjoy the Rose Bowl, Bro! I have chronic ear infections caused by a "frozen right ear drum" that lead to periodic bouts of vertigo, but nothing that debilitating. Hope you get that fixed soon.
Palama Offline
#37 Posted:
Joined: 02-05-2013
Posts: 23,705
Like Delta said, thought no news was good news.

Bummers that you still haven't progressed. Will keep you and your young family in my thoughts and prayers. Pray
rfenst Offline
#38 Posted:
Joined: 06-23-2007
Posts: 39,336
Sorry to learn your problem has not resolved. The situation must be scary and miserable.
JKilburn Offline
#39 Posted:
Joined: 10-19-2011
Posts: 1,461
rfenst wrote:
Sorry to learn your problem has not resolved. The situation must be scary and miserable.

Any other advice or what to possibly do next? You've led me quite well so far and I appreciate it. Can pm me if you'd rather. Thanks.

Also thanks to the others for the well wishes and I'll keep updating especially since Snowwolf777 is kinda in the same situation.
JKilburn Offline
#40 Posted:
Joined: 10-19-2011
Posts: 1,461
Just went to the neurologist last week and they are going to try a 3rd medication. Am on Depakote now but they are weening me off of it which sucks because the headaches and uneasiness come back ten fold. Hopefully find out Monday if insurance approves an ultra sound on my carotid arteries. Not holding my breath though and can't afford to pay out of pocket. If no relief on 3rd medicine my possibly try going to Cleveland or Mayo clinic and see what they can do. Still alive and kicking but with it being winter and not getting out much I feel like I'm turning into Jack Torrance in The Shining.

http://www.youtube.com/watch?v=oOBbJw0MLvk

or the Homer Simpson version

http://www.youtube.com/watch?v=5yGJGTjV2WE
Palama Offline
#41 Posted:
Joined: 02-05-2013
Posts: 23,705
Praying and sending some positive thoughts out to you buddy Pray
cacman Offline
#42 Posted:
Joined: 07-03-2010
Posts: 12,216
Best wishes bro. Depakote sucks. VALIUM!!!
gryphonms Offline
#43 Posted:
Joined: 04-14-2013
Posts: 1,983
TIGERCDW I nominate you for Wheels douche of the day.
The humor on this forum is usually in good fun.
Laughing at a serious medical condition is ignorant, offensive, and mean spirited.
Hope you had s good laugh, no one else did.

J good luck, sending positive thoughts.
JKilburn Offline
#44 Posted:
Joined: 10-19-2011
Posts: 1,461
cacman wrote:
Best wishes bro. Depakote sucks. VALIUM!!!

Depakote did nothing for me at all except make my mood a tad better as it's somewhat an anti depressant.. I use norco for my head and back.
JKilburn Offline
#45 Posted:
Joined: 10-19-2011
Posts: 1,461
gryphonms wrote:
TIGERCDW I nominate you for Wheels douche of the day.
The humor on this forum is usually in good fun.
Laughing at a serious medical condition is ignorant, offensive, and mean spirited.
Hope you had s good laugh, no one else did.

J good luck, sending positive thoughts.

Thanks for the kind words. Tigers harmless and means no harm. He has said more nice things to me than bad but I think he's trying to get in my pants.
DrafterX Offline
#46 Posted:
Joined: 10-18-2005
Posts: 98,555
That Bassard..!! Mad
DrafterX Offline
#47 Posted:
Joined: 10-18-2005
Posts: 98,555
JKilburn wrote:
Just went to the neurologist last week and they are going to try a 3rd medication. Am on Depakote now but they are weening me off of it which sucks because the headaches and uneasiness come back ten fold. Hopefully find out Monday if insurance approves an ultra sound on my carotid arteries. Not holding my breath though and can't afford to pay out of pocket. If no relief on 3rd medicine my possibly try going to Cleveland or Mayo clinic and see what they can do. Still alive and kicking but with it being winter and not getting out much I feel like I'm turning into Jack Torrance in The Shining.

http://www.youtube.com/watch?v=oOBbJw0MLvk

or the Homer Simpson version

http://www.youtube.com/watch?v=5yGJGTjV2WE




hope you find relief soon... Pray
JKilburn Offline
#48 Posted:
Joined: 10-19-2011
Posts: 1,461
Latest update is that nothing has changed at all. Now the neurologist is sending me to Indiana University Hospital near Indy. I go in the middle of September. The oddest thing is that I take Effexor for the headaches and if I miss a day or two the pain comes back ten fold.

The last month has been screwy as my dad is very bi polar/depression so been dealing with that fun. Lets just say he was on life support for close to a month and is a shell of his former self. He's home now but who knows what the future holds.
cacman Offline
#49 Posted:
Joined: 07-03-2010
Posts: 12,216
JKilburn wrote:
Latest update is that nothing has changed at all. Now the neurologist is sending me to Indiana University Hospital near Indy. I go in the middle of September. The oddest thing is that I take Effexor for the headaches and if I miss a day or two the pain comes back ten fold.

The last month has been screwy as my dad is very bi polar/depression so been dealing with that fun. Lets just say he was on life support for close to a month and is a shell of his former self. He's home now but who knows what the future holds.

Hope you and your family are able to find some peace.
Get your head checked. Hopefully there's nothing serious going on inside causing the headaches & vertigo. Unfortunately the vertigo will never completely go away. Bouts of symptoms return on occasion. Has it been considered the headaches could be related to some sort of allergy - maybe certain foods?
Best wishes bro.
dlandri21 Offline
#50 Posted:
Joined: 07-31-2010
Posts: 334
I.had it a few years ago following a severe sinus infection. Apparently.fluid.collected in my inner ear canals causing vertigo. Dramamine and bonine.(basically non.drowsy dramamine) could help. Both are over the counter
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