Mattie B
Tuesday, August 24, 2010 7:33:00 AM
Whats the word on the surgery?
DrafterX
Tuesday, August 24, 2010 7:35:00 AM
banned...
HockeyDad
Tuesday, August 24, 2010 7:35:00 AM
Was the fencepost removed?

:)

Mattie B
Tuesday, August 24, 2010 7:36:00 AM
I thought I saw a recent post
bloody spaniard
Tuesday, August 24, 2010 7:44:00 AM
#3- One leg's longer than the other since he had the fencepost removed.

He's in big shoe therapy.

teedubbya
Tuesday, August 24, 2010 7:44:00 AM
Holding pattern. Long story short......

diameter of aorta at the root should be 3.2ish CM. Mine was originally measured at 4.2CM. The risk of surgery vs. the risk of not doing surgery (valve sparing aortic root replacement) becomes about equal at 5.0CM. The risk of not having surgery becomes greater than the risk of having surgery at about 5.5CM.

According to the docs in KC mine has grown to 5.3CM (not my **** you jackalopes its still much smaller than that). The result is I switched from once a year monitoring to every 6 months and prep for surgery. I've been in that pattern for about 2 years (where I could have surgery at any time but have been putting it off....knowing my days are numbered.).

I finally decided to bite the bullet and take the plunge. I want the best and the best IMHO is the Cleveland Clinic. The docs in KC claim they can do the surgery but never have (its not common and is pretty tricky/risky). The folks in cleveland have done hundreds of them in the last decade or so.

I went to the CC a few months ago (never did find the steamer) and went through a couple days of testing.

They (CC) measured it at 4.8CM. A full .5 CM less than the folks in KC.... a margin of error equal to having surgery or not.

I've since been trying to resolve this.

Bottom line.... Cleveland is right (I think better images and more experience), and I am back to once a year monitoring at the Cleveland Clinic rather than KC.

There is near 100% certainty I need the surgery and it will continue to grow, but it could be next year or it could be in 10 years.

teedubbya
Tuesday, August 24, 2010 7:45:00 AM
sorry for the long reply, but you asked 😉
teedubbya
Tuesday, August 24, 2010 7:51:00 AM
wild card.....

getting dna tested for marfans, ehlers dahnlos, loes deitz and several other connective tissue disorders. Results of these tests could move the risk window up or down.

bloody spaniard
Tuesday, August 24, 2010 7:53:00 AM
Doesn't sound to me as though you need the surgery right now, Tim. Could be years from now if at all (stranger things have happenened if you borrow from the nutritional handbook & take better care of yourself).

Smart thinking in getting the second opinion btw.

Either way, welcome back, bro. The muslims defenders have missed you.

HockeyDad
Tuesday, August 24, 2010 7:54:00 AM
Allah be praised.
teedubbya
Tuesday, August 24, 2010 7:55:00 AM
the muslims are the whole reason the root of my aorta is so large. I have changed my opinion on them (for now) since it was the mainstream muslims that did it.

by the way I'm not back for long. Just popped in, posted, then saw this one.

crazy busy time right now but nothing to do with health.

DrafterX
Tuesday, August 24, 2010 8:09:00 AM
^ stop putting things in your aorta....
bloody spaniard
Tuesday, August 24, 2010 8:11:00 AM
Always knew you had a big head and ass but a big heart? HA HA HA, er ok... Sorry, caught me by surprise.
bloody spaniard
Tuesday, August 24, 2010 8:14:00 AM
Kidding aside, I hope you get better. Don't be a stranger (biting knuckle till it bleeds as I type this).

Gotta run, bro.

JadeRose
Tuesday, August 24, 2010 8:28:00 AM
You gonna have time do any fishing this fall?
teedubbya
Tuesday, August 24, 2010 11:11:00 AM
jade we can and should figure something out.
Ram27
Tuesday, August 24, 2010 11:16:00 AM
Wishing you all the best TW, keep the faith my brother.

Ram

teedubbya
Tuesday, August 24, 2010 11:21:00 AM
Thanks RAM. I will.

side note: I have a distent family member who has a drinking problem. By shortly after noon this person is fairly well incoherent. My mom has mentioned my heart issue to them and they have relayed it on to others as I need a heart transplant.

when it got to me from someone else that I needed a heart translpant and questions as to when it is going to happen, I responded that the chineese child I purchased as a donor has not grown up enough yet so it is just a waiting game at this time. my mom was mortified when it got back to her.

DrafterX
Tuesday, August 24, 2010 11:23:00 AM
^ not a bad idea tho...
teedubbya
Tuesday, August 24, 2010 11:26:00 AM
I was planning on using CROS until he escaped and turned to meth and stuff